Our Story

ALS / SLA Action Canada is a new patient-led initiative, formed in February 2020, that is advocating for urgent access to promising therapies for Canadians living with ALS.

In just a few months we have grown to 40 families across Canada dealing with ALS. In order to achieve our goals we think it is vitally important that we continue to build a strong network of Canadian ALS patients and supporters so that we can amplify the voices of Canadian families dealing with ALS. Please join us!

Our Mandate

We will rapidly and aggressively support, with our collective voice, any initiative to improve access to therapies in the fight against ALS

 

Why A New Voice

While we support, and are highly appreciative of, the programs and services offered by the ALS societies across Canada, these societies lack the resources to address all of the priorities of all Canadians with ALS, their families and their communities.

We also believe there is an ALS Crisis, and therefore crisis management strategies and tactics should be brought to bear.

Our Executive Committee

Deane Gorsline (Chair)

Ottawa, Ontario

Bill Duff

Halifax, Nova Scotia

Jan Mattingly

OTTAWA, ONTARIO

Barb Gorsline

Quesnel, B.C.

Rick Wilson

South Surrey, B.C.

Kerry Winkler

West Vancouver, B.C.

Greg Gowe

North Vancouver, B.C.

Our Partners and Advisors

We are fortunate to be receiving professional services from:

  1. Kathryn Hendrick, GBA Group
  2. Mary Anne Carter, Earnscliffe Strategy Group
  3. John Thomas, Bare Advertising & Communications

Our advisors include senior politicians, neurologists, pharmacists, microbiologists and financial strategists.  They make their time available to our Chair and Executive Committee to help inform and guide our decisions.  We are so very grateful for the gifts of your time and expertise – thank you!