News

Check out here for our news, and news from Canada and around the world  about new therapies, clinical trials, research and patient-led advocacy.

Deane Gorsline was diagnosed with ALS at 29 and is now fighting to access new treatments – watch a video about him here

17.10.20

READ MORE

ALS Action Canada meets with BC NDP candidates from Vancouver’s North Shore

16.10.20

READ MORE

ALS Action Canada meets with CF Get Loud Canada to discuss advancing Canada’s “Rare Disease Strategy”

15.10.20

READ MORE

ALS Action Canada members takes part in pharmaceutical industry round-table

12.10.20

READ MORE

ALS Action Canada meets with BC Liberal Party candidates from Vancouver’s North Shore

05.10.20

READ MORE

A Windsor mom fights back against ALS diagnosis

Our Windsor
24.09.20

READ MORE

ALS Action Canada calls for national leadership from BC for ALS treatment options, care and research

15.09.20

READ MORE

ALS Action Canada meets with federal ALS Caucus members

08.09.20

READ MORE

2 College Students Dreamed Up an A.L.S. Treatment. The Results Are In.

New York Times
02.09.20

READ MORE

B.C. announces new coverage for ALS drugs, and funding towards centre of excellence

Maple Ridge Pitt Meadows News
25.08.20

READ MORE

A new approach to ALS drug trials gives patients hope

Boston Globe
12.08.20

READ MORE

ALS Action Canada’s submission on the “Proposed Alignment of CADTH Drug Reimbursement Review Process”

10.08.20

READ MORE

ALS Action Canada calls on Major League Baseball and Toronto Blue Jays to support annual Lou Gehrig Day

08.08.20

READ MORE

ALS Action Canada’s submission to the Federal Government for the 2021 Budget

06.08.20

READ MORE

ALS Action Canada’s submission to the federal Patent Medicine Prices Review Board

04.08.20

READ MORE

Tofersen Safe, Appears to Slow Disease Progression in SOD1 ALS Patients, Phase 1/2 Trial Shows

ALS News Today
22.07.20

READ MORE

ALS Action Canada meets with Francis Drouin, Chair of federal ALS Caucus

03.07.20

READ MORE

Trick-shot challenge shines spotlight on Flames exec Chris Snow in fight with ALS

Calgary Sun
19.06.20

READ MORE

North Van family living with ALS advocates for more research

North Shore News
18.06.20

READ MORE

Staying positive after a shattering ALS diagnosis

Belleville Intelligencer
05.06.20

READ MORE

Hope for an ALS cure for Squamish ski instructor, and others like him

Squamish Chief
04.06.20

READ MORE

Star Trek’s Kenneth Mitchell Opens Up About Continuing His Acting Career After ALS Diagnosis

People.com
19.03.20

READ MORE

This Ontario teen was 12 when she became a caregiver. She’s not alone .

CBC News
29.01.20

READ MORE

ALS: Quebec’s first philanthropic research chair – $1 million to advance research in Amyotrophic Lateral Sclerosis at the INRS

Institut National de la recherche scientifique (INRS)
27.01.20

READ MORE

Former Peterborough Pete Mark Kirton now facing off against ALS

Peterborough Examiner
27.10.19

READ MORE

We need a public outcry’: B.C. father with ALS ends life after struggle to stay at home

CTV News
09.08.19

READ MORE

Aaron Volpatti finishes Ironman for ALS

Revelstoke Review
08.08.19

READ MORE

Montreal neurologist says doctors must be better about early detection of ALS

Montreal Gazette
12.06.18

READ MORE

ALS has devastating effect on families

The Chronicle Herald
07.06.18

READ MORE

ALS: Canadian patients eligible for inclusion in U.S. clinical trials

Montreal Gazette
29.03.18

READ MORE

Mauril Bélanger, longtime Ottawa-Vanier MP, dies of ALS at 61

CBC News
16.08.16

READ MORE