News
Check out here for our news, and news from Canada and around the world about new therapies, clinical trials, research and patient-led advocacy.
Notable ALS Legislation / Research Funding Announced in 2020
17.11.20
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Petition launched calling on Canada’s Health Minister to initiate pilot program to speed up approval process for new ALS therapies
08.11.20
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Jambaree Donates ALS / SLA Action Canada Website
Press Release
04.11.20
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It’s Official! All 30 Major League Baseball Teams Endorse League-Wide Lou Gehrig Day!
Press Release
30.10.20
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US House and Senate introduce Accelerating Access to Critical Therapies for ALS Act (ACT for ALS)
Press Release
29.10.20
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BRAUN: Bureaucrats will stop game-changing meds from coming here
Toronto Sun
28.10.20
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Patients, health organizations band together to bring breakthrough treatments to Canada sooner
Global News
21.10.20
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Toronto Blue Jays support annual, league-wide “Lou Gehrig Day” to help defeat ALS
21.10.20
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Deane Gorsline was diagnosed with ALS at 29 and is now fighting to access new treatments – watch a video about him here
17.10.20
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ALS Action Canada meets with BC NDP candidates from Vancouver’s North Shore
16.10.20
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BC goes to the polls on October 24; ALS Action Canada still waiting for response to letter
15.10.20
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ALS Action Canada meets with CF Get Loud Canada to discuss advancing Canada’s “Rare Disease Strategy”
15.10.20
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ALS Action Canada members takes part in pharmaceutical industry round-table
12.10.20
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ALS Action Canada meets with BC Liberal Party candidates from Vancouver’s North Shore
05.10.20
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A Windsor mom fights back against ALS diagnosis
Our Windsor
24.09.20
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ALS Action Canada calls for national leadership from BC for ALS treatment options, care and research
15.09.20
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ALS Action Canada meets with federal ALS Caucus members
08.09.20
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2 College Students Dreamed Up an A.L.S. Treatment. The Results Are In.
New York Times
02.09.20
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B.C. announces new coverage for ALS drugs, and funding towards centre of excellence
Maple Ridge Pitt Meadows News
25.08.20
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A new approach to ALS drug trials gives patients hope
Boston Globe
12.08.20
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ALS Action Canada’s submission on the “Proposed Alignment of CADTH Drug Reimbursement Review Process”
10.08.20
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ALS Action Canada calls on Major League Baseball and Toronto Blue Jays to support annual Lou Gehrig Day
08.08.20
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ALS Action Canada’s submission to the Federal Government for the 2021 Budget
06.08.20
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ALS Action Canada’s submission to the federal Patent Medicine Prices Review Board
04.08.20
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Tofersen Safe, Appears to Slow Disease Progression in SOD1 ALS Patients, Phase 1/2 Trial Shows
ALS News Today
22.07.20
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Larry Uteck entering Canadian Football Hall of Fame
CBC
16.07.20
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ALS Action Canada meets with Francis Drouin, Chair of federal ALS Caucus
03.07.20
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Trick-shot challenge shines spotlight on Flames exec Chris Snow in fight with ALS
Calgary Sun
19.06.20
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North Van family living with ALS advocates for more research
North Shore News
18.06.20
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BC Government provides “non response” response to concerns of 15 BC ALS families
12.06.20
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ALS Action Canada meets with MP Kerry-Lynne Findlay, PC, Q,C, (South Surrey – White Rock)
10.06.20
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Staying positive after a shattering ALS diagnosis
Belleville Intelligencer
05.06.20
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Hope for an ALS cure for Squamish ski instructor, and others like him
Squamish Chief
04.06.20
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Star Trek’s Kenneth Mitchell Opens Up About Continuing His Acting Career After ALS Diagnosis
People.com
19.03.20
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This Ontario teen was 12 when she became a caregiver. She’s not alone .
CBC News
29.01.20
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ALS: Quebec’s first philanthropic research chair – $1 million to advance research in Amyotrophic Lateral Sclerosis at the INRS
Institut National de la recherche scientifique (INRS)
27.01.20
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Former Peterborough Pete Mark Kirton now facing off against ALS
Peterborough Examiner
27.10.19
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“Dance Me To The End: Ten Months and Ten Days with ALS” by BC author, Alison Acheson
23.10.19
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Paralyzed author writes about loss and grief in book written with his eyes
CTV News
22.09.19
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PJ Stock Competes in The Battle of the Blades in support of ALS
Press Release
19.09.19
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Sean M. Healey & AMG Center for ALS at Mass General launches first ALS Platform Trial with 5 promising drugs
Press Release
18.09.19
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We need a public outcry’: B.C. father with ALS ends life after struggle to stay at home
CTV News
09.08.19
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Former NHL’er, Aaron Volpatti finishes Ironman for ALS
Revelstoke Review
08.08.19
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Montreal neurologist says doctors must be better about early detection of ALS
Montreal Gazette
12.06.18
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ALS has devastating effect on families
The Chronicle Herald
07.06.18
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ALS: Canadian patients eligible for inclusion in U.S. clinical trials
Montreal Gazette
29.03.18
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BrainStorm Seeking Approval To Distribute NurOwn® in Canada
Media Release
21.02.17
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BrainStorm seeks early approval for ALS stem cell treatment in Canada
CTV Moring News
21.02.17
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Mauril Bélanger, longtime Ottawa-Vanier MP, dies of ALS at 61
CBC News
16.08.16
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