Take Action

We are working on coordinated ways that our supporters can take action to help get Our ALS Plan implemented. Please keep checking on this page.

In the meantime, you can take the following action to help us and to help #EndALS:

  1. Sign up on our Supporter List at the bottom of this page.
  2. Tell others in your network about us, direct them to our website and ask them to join our Supporter List.
  3. If your family has been impacted by ALS, send us your story so that we can add it to our website. Each story is so important in driving change.
  4. Follow us on Twitter (@ALSAction) and FaceBook and actively engage (e.g. like, retweet) with our tweets and posts.
  5. Follow Brian Wallach on Twitter (@BSW5020) and actively engage with his tweets and posts.  He and his organization, I AM ALS (also on FaceBook and Instagram), have started a global movement to #EndALS and we are part of that movement.
  6. Contact your Member of Parliament, and:
    • tell them that ALS treatments and cures are important to you;
    • tell them that this is a time of unprecedented hope for people with ALS;
    • ask them to take urgent action to implement Our ALS Plan; and
    • ask them to join the existing federal, multi-party ALS Caucus. The ALS Caucus was formed in 2017 following the death of MP Mauril Bélanger. It is chaired by Francis Drouin, Liberal MP for Glengarry—Prescott—Russell (Ontario).
  7. Contact federal Health Minister, Patty Hajdu (Patty.Hajdu@parl.gc.ca), and tell her that:
    • ALS treatments and cures are important to you;
    • this is a time of unprecedented hope for people with ALS; and
    • that you want her to take urgent action to implement Our ALS Plan.
  8. Contact your provincial health minister, with a copy to your MPP, MLA, MNA, and tell them that:
    • ALS treatments and cures are important to you;
    • this is a time of unprecedented hope for people with ALS; and
    • that you want them to take urgent action to implement Our ALS Plan
  9. Sign this petition calling on the US FDA to rapidly approve a new ALS therapy called AMX0035.
  10. If you have family or friends in the US ask them to call on their US Representative to co-sponsor the Accelerating Access to Critical Therapies for ALS Act H.R. 7071.
  11. Support an initiative calling on Major League Baseball to have an annual “Lou Gehrig Day”. To show your support follow them on Twitter (@LG4Day) or FaceBook.